This Lady Is Altering How India Treats Disabilities

A single dialog, an individual, or a gathering can change you. Whether it is with Preethi Srinivasan, it could probably alter the way in which you have a look at life. Preethi has confronted each problem that life has thrown her method, carving a path to assist others when she was in dire want of assist herself. 

The 42-year-old is much from unusual. Born in Chennai and raised throughout three continents, the world was actually her oyster. The nationwide degree swimmer began swimming on the age of three. 

Shortly after the 1983 World Cup, impressed by Sir Vivian Richards, she additionally began taking part in cricket at 4. Taking part in for the Tamil Nadu state crew at simply eight years outdated, she was the captain of the under-19 state crew. 

Along with her sights set on becoming a member of the nationwide crew together with reaching excellence in lecturers, she felt that the whole lot was going her method.

“Not even the shadow of failure had touched my life,” she explains.

However, the whole lot modified within the blink of a watch when she was 18. Having fun with along with her associates on a Puducherry seaside, she abruptly fell down whereas taking part in within the water. A spinal wire harm left her with none feeling beneath the neck. 

By way of the unwavering love and help of her mother and father, and her unbelievable resilience, she emerged like a phoenix, and at present gives wings to lots of of individuals with spinal wire harm by means of her enterprise ‘Soulfree’, a charitable belief.

Soulfree INSPIRE (Built-in Spinal Rehabilitation Centre) in 2013, the belief’s rehab centre, gives holistic remedy, rehabilitation, medical care, training, counselling, employment alternatives to individuals with spinal wire accidents free of charge. The 20,000 sq. toes facility in Tiruvannamalai, Tamil Nadu, has helped over 200 folks with extreme disabilities stay a lifetime of dignity to date.

Swimming in opposition to the tide

Preethi has helped over 2500 people with spinal cord injuries
Preethi has helped over 2500 folks with spinal wire accidents

After the accident, Preethi was in shock and confronted a very robust time. From excelling in all spheres of life, being confined to a wheelchair broke her spirit.

“My coronary heart was completely damaged. I had a privileged existence for the primary 18 years of my life. I used to be showered with love at house, was within the high 2 % of scholars in America, performed cricket with legends, was extraordinarily match and exquisite. I used to be making my method in direction of success, when the accident left me in full shock,” Preethi shares with The Higher India

She provides that from having the ability to throw the ball with full drive, she was unable to even transfer her little finger. 

“From being extraordinary in each method, I abruptly couldn’t even feed myself, bathe myself. I couldn’t even get away from bed. It actually broke me,” she provides.

Her mother and father stood by her like rocks by means of this whole ordeal. Her father give up his job to maintain her they usually moved to Tiruvannamalai, a non secular, temple city, to heal.

Preethi then tried to get entry to a correspondence course for BSc Psychology, however she was rejected as there have been sensible lessons and the universities weren’t disabled-friendly. There have been no elevators or ramps.  

She remembers being requested, “Why do folks such as you come to check?” Her father, her largest cheerleader, purchased her books to check, and motivated her to teach herself, diploma, or no diploma. He would learn out to her from numerous books throughout genres, from fiction to instructional books to non secular books. She would battle with him, however he didn’t let go of her hand, and helped her overcome her ache. 

Simply as she began piecing her life collectively, one other huge wave hit her. Her father died of a coronary heart assault in 2007, and simply 4 days later, her mom, too, had a coronary heart assault and needed to have a bypass surgical procedure. 

“My world was rocked once more. I had an 80-year-old grandmother to maintain. We needed to go to Chennai for the surgical procedure. We had no concept how we’d handle the following meal or who would even assist me sit on my wheelchair. I needed to begin incomes cash and life appeared tough once more,” says Preethi.

At this level, her associates reiterated the necessity for her to get a proper diploma. She took up BSc Medical Sociology because it had no sensible exams. She additionally did MSc in Psychology regardless of desirous to do counselling psychology.

“I needed to counsel folks as my voice is the one factor I’ve. I used to be denied admission and needed to accept psychology,” she says.

‘We too deserve a lifetime of dignity’

Rehabilitation is provided free of cost at Soulfree
Rehabilitation is supplied freed from value at Soulfree

Throughout this time, as she grappled with getting an training and a remedy for her mom, she encountered two deaths that shook her to the core. 

“Not desirous to maintain them, two paraplegic women who I knew have been apparentfly poisoned by their households. It left me questioning, India has one of many largest populations and but there isn’t a place for a quadriplegic or a paraplegic particular person to stay with dignity. There was nobody to maintain me when my mother bought sick,” she provides.

She then began researching and located that there weren’t many long-term rehabilitation centres or locations that supplied look after folks with spinal wire accidents. Her mom then persuaded her to start out such a haven that gives a lifetime of dignity for folks with extreme disabilities. 

“At first, I laughed off the concept as I had no clue about working or financing a non-profit organisation. However the demise of those women made me get up. If I’m simply going to be afraid to do one thing, I’m a part of the issue. Nobody understands this higher than me because of my lived expertise. I made a decision to boost my voice and do no matter I can to someway uplift this section of society as a result of we’re so fully invisible,” she provides.

With this in thoughts, she began Soulfree Encourage. Individuals include a caregiver and spend about 6 months within the centre. They obtain coaching, which Preethi calls re-engineering, the place they get emotional and bodily rehabilitation. 

“We restore their will to stay. Our purpose is to revive self-reliance from a physiological, psychological and socio financial perspective. It’s vital for them to go house and have the ability to earn some cash. We’re giving worldwide requirements of care freed from value. We have now physiotherapy, occupational remedy, hydrotherapy, sports activities, counselling periods, coaching periods, tailoring, laptop lessons and extra. It’s a holistic system born from an experiential framework,” provides Preethi.

Soulfree additionally affords data and consciousness applications about spinal wire harm. They’ve a particular concentrate on girls and supply a help system to these with extreme disabilities by means of instructional and employment alternatives. In addition they present wheelchairs and medical care to these in want. To maintain everybody’s spirits up, additionally they have convention calls.

Karthikeyan (25), was bedridden after he fell from a tree three years in the past. He got here to Soulfree six months again and is now capable of stroll with a stick.

“Being bedridden made me ponder ending my life. I additionally had some bedsores. I used to be utilizing a wheelchair. Now, I’m able to stroll utilizing a stick and do my every day chores and have learnt tailoring and computer systems, which I’ll use to help myself as soon as I’m again house,” says Karthikeyan.

Preethi can be working with the Tamil Nadu authorities to incorporate rehabilitation within the authorities insurance coverage scheme. She is a member of the advisory board for the ‘Welfare of the In a different way-Abled’ in Tamil Nadu.

“Most individuals, after a spinal wire harm, go house and don’t know what to do. The federal government ought to work on offering correct recognition for our incapacity and with employment alternatives for folks like us,” she says. 

What gave her the energy to take action a lot whereas she herself confronted innumerable challenges in her every day life? 

Preethi's parents were her greatest support
Preethi’s mother and father have been her biggest help

“I got here to know that as an alternative of feeling sorry for myself, I ought to attempt to make use of the chance of the problem as a result of in any other case life would have been too straightforward for me. When you might have particular talents, you might be given particular challenges. Should you succeed when the whole lot goes your method, it’s not an enormous deal. It’s when it’s a must to field together with your palms tied behind your again and save the world, that’s when it’s a victory,” she smiles.

She nonetheless has days when she feels low, that’s when she will get on a convention name along with her associates from Soulfree, who inform her that life will get higher. Soulfree has helped over 2,500 folks to date. 

“These lives are invisible and the world discards us so simply if we die. I imagine that each human life has a worth no matter your potential or incapacity, nobody deserves to die. My objective is to make sure that nobody dies of bedsores or because of their household’s compulsions,” she provides.

When the world closed the door on Preethi, she determined to create change and alternatives. She is now pursuing her PhD from IIT Madras.

Should you want to donate to Soulfree, you are able to do it right here. 

Edited by Padmashree Pande.